Unit 3. 170-180 Carlton Road, Nottingham NG3 2BB

0115 784 3031 | info@theharleyjaetrust.org

Registered Charity No: 1160377

What We Do

The Harley Jae Trust has been created to help children with life limiting conditions and their families both
in the community and in hospital settings. As we grow as an organisation we will be launching different appeals to help us achieve our goals.

The Long Term Ventilation Team (LTV) at Nottingham’s Children’s Hospital

Our first aim is to provide relief and support for long term patients in hospital and their families for children who suffer from life changing conditions. Sometimes children with these complex conditions need to endure long stays in hospital often for months at a time while they are receiving treatment. This is not only a challenge for the children and families but also the medical staff too.

The Harley Jae Trust is raising money to help provide relief and support in the form of additional equipment and better facilities for children who have to stay in hospital to make the experience that little bit more comfortable. We hope that this will free up bed spaces for other children and help to save lives.

The Long Term Ventilation Team (LTV) at Nottingham’s Children’s Hospital wrote the following statement in regards to this:

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Our Story

The Harley Jae Trust was established in 2006 as a trust fund for our little boy, Harley Jae Blanchard-Rafter. He was born with a very rare neurological condition that left him with profound and multiple learning difficulties, severe epilepsy and physically disabled. You can find out more about Harley on our ‘About Harley’ Page. Harley’s […]

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What We Do

The Harley Jae Trust has been created to help children with life limiting conditions and their families both in the community and in hospital settings. As we grow as an organisation we will be launching different appeals to help us achieve our goals. The Long Term Ventilation Team (LTV) at Nottingham’s Children’s Hospital Our first aim is […]

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About Harley

Our little boy Harley Jae suffered from a rare neurological condition known as pontocerebellar hypoplasia type six. During his life he was one of only two children in the world with this condition. This diagnosis left Harley with severe uncontrolled epilepsy, global developmental delay and learning difficulties. When he was four months old, he was rushed […]

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Support Us

The Harley Jae Trust relies on donations and sponsorship as one of our main funding streams. Without your help we would not be able to support children with life limiting and life changing conditions. Our hope is to be able to continue to support the children in Nottingham’s Paediatric Critical Care Unit (PCCU) for many […]

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