Supporting children with life limiting conditions.
Helping families make memories that last a lifetime.

Provide equipment and resources to improve the health, care and well-being of the children and their families.

Harley Jae Blanchard-Rafter
Our little boy, Harley Jae, was born with a rare neurological condition known as pontocerebellar hypoplasia type six. During his lifetime, he was one of only two children in the world with this condition. The trust was set up in 2006 to provide Harley with the vital medical equipment required to aid his development and make his life more comfortable. On February 22nd 2013, Harley Jae sadly passed away at the age of 7. In his memory we became a registered charity so we could provide equipment for children with life limiting and life changing conditions.
How can you support us?


One off Donation

You can make a one off donation, safely via credit or debit card, here on our Golden Giving page. Anywhere, anytime. Just click here to visit the page.


Regular Donation

If you’d like to set up a regular donation, with an amount of your choice, via direct debit you can do it here, using our Golden Giving page.


Plan a Fundraiser

Got a great idea for a fundraiser or fancy yourself a bit of a planner? Why not get in touch and plan an event for us? We’ll even send you a special fundraising pack!


Support a Fundraiser

Don’t have the time to plan a fundraiser? Don’t worry! You can support one of our existing fundraisers, in a number of ways, by contacting us here.


Attend an Event

We hold regular fundraising events throughout the year. Check out a list of our upcoming events and contact us to buy tickets.


Wear our Badge

We love support in all shapes and sizes, we wear our badge with pride and now you can to… click here for a Harley Jae social media badge.


A message from our Chairman;
After a successful 2017, our chairman, Joe Rafter wanted to say a huge thank you to everyone that has supported the charity throughout the year and in it’s entirity. Without the continued hardwork of volunteers, trustees and supporters we wouldn’t be where we are today. We look forward to another year of changing the lives of those in need.

Well-being sessions for parent/carers

The Harley Jae Trust are happy to announce our new well-being sessions available to parent/carers of children living with life limiting or life changing conditions. Creating a relaxed space where parents/carers can enjoy sometime with people facing similar experiences...

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