The Harley Jae Trust | Supporting children with life changing conditions

Supporting children with life limiting conditions.

Helping families make memories that last a lifetime.

Providing hospitals with life changing equipment.

Harley Jae Blanchard-Rafter

Our little boy, Harley Jae, was born with a rare neurological condition known as pontocerebellar hypoplasia type six. During his lifetime, he was one of only two children in the world with this condition. The trust was set up in 2006 to provide Harley with the vital medical equipment required to aid his development and make his life more comfortable. On February 22nd 2013, Harley Jae sadly passed away at the age of 7. In his memory we became a registered charity so we could provide equipment for children with life limiting and life changing conditions.

How can you support us?

1

One off Donation

You can make a one off donation, safely via credit or debit card, here on our Golden Giving page. Anywhere, anytime. Just click here to visit the page.

2

Regular Donation

If you’d like to set up a regular donation, with an amount of your choice, via direct debit you can do it here, using our Golden Giving page.

3

Plan a Fundraiser

Got a great idea for a fundraiser or fancy yourself a bit of a planner? Why not get in touch and plan an event for us? We’ll even send you a special fundraising pack!

4

Support a Fundraiser

Don’t have the time to plan a fundraiser? Don’t worry! You can support one of our existing fundraisers, in a number of ways, by contacting us here.

5

Attend an Event

We hold regular fundraising events throughout the year. Check out a list of our upcoming events and contact us to buy tickets.

6

Wear our Badge

We love support in all shapes and sizes, we wear our badge with pride and now you can to… click here for a Harley Jae social media badge.

WHAT PEOPLE SAY.

I can't put into words how much it meant to us! At that time we were literally going through the motions minute by minute, hour by hour and it's not till tonight sat watching The Hospital that all the memories came flooding back. I'm so happy to tell you that our son Reggie pulled through and is now a cheeky 18 month old who is into everything. Unfortunately his twin brother Archie didn't survive, he was born sleeping. It's been a very difficult journey but my 3 boys here with me keep me going. Keep doing what your doing because believe me when I tell you it's the small gestures that really matter, restoring faith in humanity! xxx

Sarah Lee Parent

A massive thank you to all of you for supporting the Harley Jae Trust, keep up the good work.IMG_0477

Adam Peaty Supporter

Hello, we're from the children's long term ventilation team at Nottingham's children's hospital. We'd just like to say a BIG thank you to the Harley Jae Trust for all their help, support and fundraising which has benefitted our children and families go from hospital to home. Thank you very much.IMG_0154

Nursing team Children's long term ventilation team

Hello The Harley Jae Trust. On behalf of Kallum Mann, myself, and the second carer, Debbie, who accompanied Kallum and his family on their first holiday in 6 years would like to say... A massive THANK YOU. Without your support, this holiday would not have been possible. Kallum was able to enjoy lots of family time, making wonderful memories. And we hope that we were able to contribute to. Thank you, thank you! You're doing an amazing thing, enabling families to spend special time together.

Jane Dodwell Carer

A message from our Chairman;

After a successful 2017, our chairman, Joe Rafter wanted to say a huge thank you to everyone that has supported the charity throughout the year and in it’s entirity. Without the continued hardwork of volunteers, trustees and supporters we wouldn’t be where we are today. We look forward to another year of changing the lives of those in need.

The Start of Something New – Business Partnerships

Jul 25, 2018

The Harley Jae Trust are proud to announce our official business partnership with Stepping Stones Day Nursery Ltd. One of the largest day nurseries in the UK, Stepping Stones was opened in December 2000 by Gary Holmes and his wife Claire, after a successful 6 years...

Charity golf day – Spring 2018

Apr 25, 2018

On Friday the 20th of April 2018 we held our Spring Charity Golf Day. Ramsdale Golf Course hosted the fabulous day for the Harley Jae Trust and the weather was amazing for the whole event. We had 35 golfing teams enter the event - all comprising of between 3 and 5...

An established charity with established goals

Apr 10, 2018

The Harley Jae Trust has now just entered it’s fourth year of establishment. Back in February 2015 when I received an email from the Charity Commission confirming it’s registration, I had no idea where this journey was going to take me or how successful we would be....

WHAT PEOPLE SAY.

Our Partners