Helping Children with Life Limiting Conditions
Welcome to the home of The Harley Jae Trust. We support children with life limiting and life changing conditions by providing them with equipment, facilities and services that will help advance their health care and developmental needs.
The Harley Jae Trust was established in 2006 as a trust fund for our little boy, Harley Jae Blanchard-Rafter. He was born with a very rare neurological condition that left him with profound and multiple learning difficulties, severe epilepsy and physically disabled.
The Harley Jae Trust has been created to help children with life limiting conditions and their families both in the community and in hospital settings. As we grow as an organisation we will be launching different appeals to help us achieve our goals.
Our little boy Harley Jae suffered from a rare neurological condition known as pontocerebellar hypoplasia type six. During his life he was one of only two children in the world with this condition.
The Harley Jae Trust relies on donations and sponsorship as one of our main funding streams. Without your help we would not be able to support children with life limiting and life changing conditions.